Open Letter
Carer’s Allowance overpayments
We support an open letter expressing concerns about Carer’s Allowance overpayment debts
Dear Secretary of State,
We are writing to express our ongoing concerns about the continued rise in the number of outstanding Carer’s Allowance overpayment debts.
Your announcement in October 2024 to establish an independent review, led by Liz Sayce OBE, was widely welcomed. We appreciate the progress the review team has made, particularly in gathering evidence from unpaid carers affected by these debts. We also recognise that, however swiftly the Government might implement changes, reform will take time.
Given this, we are concerned that the number of carers facing overpayment debts continues to rise. Comparing Department for Work and Pensions (DWP) figures for May 2024 and February 2025, the total number of outstanding overpayments has increased by over 9,000 1 , with 143,922 carers now affected.
This comes on top of the 71% rise in overpayments debts that occurred between 2018- 19 and 2023-24, where the number of cases rose from 80,169 to 136,730 2 , despite the issue being subject to significant investigation by parliamentary committees and the National Audit Office.
While we await the independent review’s findings, we believe that the Government could be doing more to reduce the hardship unpaid carers are facing because of a fundamentally unfair system. Unless mitigating measures are implemented now, unpaid carers will continue to be affected by this scandal.
As a result, we are asking you to halt the creation of new Carer’s Allowance overpayment debts until the independent review has concluded and its recommendations are implemented.
Once the independent review has concluded, we also ask that you:
- Commit to publishing its final report in early Summer and implement its recommendations quickly.
- Look to write off existing substantial overpayments debts where carers could have been notified sooner by DWP.
Under the current system, carers can lose a year’s Carer’s Allowance (£4,258.80) for exceeding the earnings threshold by as little as £52 annually (£1 a week). This cliff edge often forces carers to choose between poverty and debt. Many already struggle financially, and these debts impact entire households, including children and disabled family members. It has also become very apparent that the lack of transparency around the way earnings are averaged is causing huge issues for unpaid carers.
Carers make an invaluable contribution to society. We want the system to reflect their worth, rather than leaving them in debt for trying to balance paid work and unpaid care.
We look forward to your timely response and hope to see urgent action on this matter.
Yours sincerely,
- Helen Walker, Chief Executive, Carers UK
- Kari Gerstheimer, CEO, Access Social Care
- Tim Bevans, CEO, Action for Carers (Surrey)
- Michelle Evans, Project Development Manager, Action for Carers Oxfordshire
- James Clarke, Chief Executive Officer, Action for Family Carers
- Giselle Hoad, Admin, Adult Social Care Warriors
- Katherine Crawford, Chief Executive, Age Scotland
- Caroline Abrahams, Charity Director, Age UK
- Jen Clark, Economic Social and Cultural Rights Lead, Amnesty International UK
- Keith Sinclair, Chief Executive, Brainwave
- Anndeloris Chacon, CEO, Bristol Black Carers
- Andrew Clark, Chair of Trustees, Buckinghamshire Disability Service
- Geoff Fimister, Spokesperson, Campaign for Disability Justice
- Jackie O’Sullivan, Co-chair, Care and Support Alliance
- Ruth MacLennan, CEO, Care for Carers
- Jennifer Twist, Chief Executive, Care for the Carers
- Dr Dani Leslie, CEO, Carer Support Carlisle & Eden
- Craig Backhouse, Chief Executive Officer, Carer Support Furness
- Karen Irons, CEO, Carers Bucks
- Lorraine Goldberg, Executive Director, Carers Centre SA Ltd
- Alice Dias, CEO, Carers Hub Lambeth
- Michele Stokes, CEO , Carers in Hertfordshire
- Claire Turner, Chief Executive, Carers Leeds
- Karen Irons, CEO, Carers Milton Keynes
- Claire Spiden, Deputy Chief Executive, Carers of East Lothian
- Carers Plus Yorkshire, CEO, Carers Plus Yorkshire
- Heidi Watson, CEO, Carers’ Resource
- Fiona Collie, Head of Public Affairs and Communications, Carers Scotland
- Jill Attwell, CEO, Carers’ Support East Kent
- Helen Wilson & Mike Humphries, Joint CEO, Carers’ Support Service
- Caroline Pope, Chief Executive Officer, Carers Support West Sussex
- Kirsty McHugh, CEO, Carers Trust
- Sophie Little, Co-Production and Project Officer, Carers Voice Norfolk & Waveney
- Rob Simkins, Head of Policy and Public Affairs, Carers Wales
- Miriam Martin, Chief Executive, Caring Together
- Joanna Cain, CEO, Citizens Advice Westminster
- Sally Tsoukaris, General Secretary, Civil Service Pensioners Alliance (CSPA)
- Simon Bull, Chief Executive, CMTUK
- Francesca Yates, Executive Director, CommuniCare
- Anna Bird, CEO, Contact
- Vanessa Perkins, Engagement and Capacity Manager, Crossroads Caring for Life
- Sonia Meikle, Welfare Benefits Manager, Croydon Sickle Cell and Thalassemia Support Group
- Frances Lawrence, Chief Executive, Dementia Carers Count
- Hannah Nicholls-Harrison, Co-chair, Disability Benefits Consortium
- Andrew MacKay, Chief Executive, Disability Law Service
- Kamran Mallick, CEO, Disability Rights UK
- Michael Beckett CDir FIoD, Chief Officer, Disability, Advice and Wellbeing Network
- Alison Fuller, Director of Health Improvement and Influencing, Epilepsy Action
- Cheryl Ward CBE, CEO, Family Fund
- Simon Fenton , CEO, Forward Carers CIC
- Ben Whalley, Chief Executive Officer, Gaddum
- Steve Cowen, Chief Executive Officer, Gateshead Carers Association
- Stuart Tattersall, Chief Executive, Greenwich Carers Centre
- Christine Fewster, Chief Executive, Hartlepool Carers
- Sara Redmond, Chief Officer of Development, Health and Social Care Alliance Scotland
- Atholl Craigmyle, Finance Director, Hilton Nursing Partners Limited
- Cath Stanley, Chief Executive, Huntington’s Disease Association
- Caroline Collier, CEO, Inclusion Barnet
- Sabine Goodwin, Director, Independent Food Aid Network
- Abby Jitendra, Principal Policy Adviser, Joseph Rowntree Foundation
- Paul Bristow, Chief Executive, Kidney Care UK
- Rachael Stokes, CEO, Kingston Carers Network
- Maria McCaul , Coordinator, London Unemployed Strategies LUS
- Jackie O’Sullivan, Executive Director of Strategy and Influence, Mencap
- Jonathan Gibson, Campaigns Lead, Metabolic Support UK
- Alex Massey, Head of Campaigns, Policy and Public Affairs, Motor Neurone Disease Association
- Shelley Elgin, Director for Wales, MS Society Cymru/Wales
- Andy Barrick, Chief Executive, Multiple System Atrophy Trust
- Alan Markey, Chair, National Association of Welfare Rights Advisers (NAWRA)
- Tim Nicholls, Assistant Director of Policy, Research & Strategy, National Autistic Society
- Sharon Brennan, Director of Policy and External Affairs, National Voices
- Joanna Solanki, CEO, n-compass Towards a Brighter Future
- Luke Bramhall, CEO, Newcastle Carers
- Colin Smith, Manager, North Lanarkshire Carers Together
- Anna Capper, Deputy Chief Officer, North Staffs Carers
- Silvia Galandini, Domestic Poverty Lead, Oxfam GB
- Juliet Tizzard, Director of External Relations, Parkinson’s UK
- Bernie DeLord, Director, Promas Caring for People CIC
- Mary Durman, CEO, Promise Inclusion Ltd
- Shameem Ahmad, Chief Executive Officer, Public Law Project
- Abby King, Head of Policy and Communications, Reading Welfare Rights
- Graham Whitham, Chief Executive Officer , Resolve Poverty
- Mark Winstanley, Chief Executive, Rethink Mental Illness
- Esther Mmbago, Advice Manager, Richmond AID
- Vicky Keeley, CEO, Sefton Carers Centre
- James Watson-O’Neill, Chief Executive, Sense
- Verinder Mander, Chief Executive Officer, Southwark Carers
- Alan Ashton MBE DL, Chief Executive, St Helens Carers Centre
- Kirsten Alderson, CEO, Suffolk Family Carers
- Rachael MacLeod, Chief Executive, Sutton Carers Centre
- Ifor Glyn, Chief Executive Officer, Swansea Carers Centre
- Pippa Sargent , CEO, The Brain Society
- Wendy Burt, CEO, The Essex Carers Network
- Jacqueline Cannon, CEO, The Lewy Body Society
- Russell Fleming, Head of Project Development, The ME Association
- Georgina Carr, Chief Executive, The Neurological Alliance
- Tam Gilbert, CEO, The Positivitree
- Alison Wood, Business Manager, The Princess Royal Trust for Carers in Hampshire
- Anna Rees, Wales Fund Manager, The Waterloo Foundation
- Thomas Lawson, CEO, Turn2us
- Mike O’Brien, Co-founder and Trustee, VOICES ADFOCAD
- Ana Palazon, Chair, Wales Neurological Alliance
- Katy Styles, Founder / carer, We Care Campaign
- Andy Hood, Head of Carers Services, Westbank Community Health & Care
- Sarah Pugh, Chief Executive, Whizz Kidz
- Dr Mary-Ann Stephenson, Director, Women’s Budget Group
- Jane van Zyl, Chief Executive, Working Families
- Sharron Smith, CEO, York Carers Centre
According to DWP statistics, there were 134,800 Carer’s Allowance overpayments in May 2024 (https://questions-statements.parliament.uk/written-questions/detail/2024-05-13/25730/) and143,922 in February 2025 (https://questions-statements.parliament.uk/written-questions/detail/2025-02-11/30627/)
National Audit Office report, December 2024. https://www.nao.org.uk/wp- content/uploads/2024/12/carers-allowance-1.pdf